Officers and Board Members
Debra L. Dominelli
Founder/ Executive Director
David Levy, JD, CCE
American Association Caregiver Education
Board Fundraising Coordinator
DeAnn Douglas, RNC
Blair P. Grubb, MD
Professor Medicine & Pediatrics
Cardiovascular Medicine, Director Electrophysiology Services
Autonomic Disorders Clinic Medical University of Toledo
Larry R. Phillips
Lynx Support Specialist, Inc.
Mary S. Jackson
Rockingham County Public Schools
*Independent audits conducted by Farmer & First, CPA's, Warrick, RI. Please feel free to contact us to request a copy.
Youth Advisory Board
Erin Brown born in 1985, is from Scotland and has been with DYNA since 2004. Erin was diagnosed with Neurocardiogenic Syncope (NCS) in 2003. She holds a law degree from the University of Glasgow. Since her graduation Erin has been working for the prosource.it group, a worldwide provider of IT services. She lives in Scotland with her beloved husband and beautiful toddler daughter. Along with volunteering for DYNA, Erin enjoys reading fantasy novels and working out. She has a reputation in DYNA for spreading a passion among our Youth Ambassadors for training to run road races.
Alice Butler, born in 1989 is from England and has been with DYNA since 2006. Alice was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2005. After nearly ten years living in the US, Alice has recently returned to the UK. She has a BA in Middle Eastern Studies and French from Hood College, Maryland and will commence an MA in International Relations in September 2013. Along with being fluent in French, Alice is also proficient in Arabic. She currently tutors students in French and English. Along with volunteering for DYNA, Alice enjoys reading, juggling and drawing. Alice is DYNA’s You-tube videographer and is known by our members for her amusing British wit.
Breanne Cyr is from Wisconsin and has been with DYNA since 2007. Breanne was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2007. She has a BS in Psychology from the University of Wisconsin. She also studied French and nursing during her time in school, and she spent a semester in France. Breanne is interested in primatology - specifically primate health and behavior. She hopes to attend graduate school as well as study primates in the wild. Along with volunteering for DYNA, Breanne enjoys documentaries, animals, languages, and travel. Breanne is known in DYNA for her love of monkeys and her determination to return to her sport of speed skating.
Mandy Dominelli, born in 1990, is from Maryland and has been with DYNA since the organization’s founding in 1999, when she was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). Mandy graduated from the University of Maryland in 2013 with a BA in journalism. She also studied environmental science and minored in sustainability. When she is not working, she can often be found outside. She is a self-confessed animal nut and enjoys horseback riding, gardening, photography, reading and writing. As DYNA's Programs and Outreach Coordinator, Mandy manages our website and social media, as well as membership for the Youth Ambassadors Program.
Parisa Emam, born in 1989, is from Washington and has been with DYNA since 2008, when she was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). She has a BA in Psychology with a minor in English from Western Washington University. She was a research assistant in WWU's Early Childhood and Family Studies Lab, and is currently pursuing her MS in Couples and Family Therapy at the University of Oregon. Along with volunteering for DYNA, Parisa enjoys cooking, writing, and outdoor adventures. Parisa is known in DYNA for her devotion towards boot camping for physical activity. Her success has inspired others to pursue boot camping for improved health and wellbeing.
Amanda Grzyb is from Connecticut and has been with DYNA since 2004. Amanda was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 1994. She has a Master's Degree in Women's Studies from Southern CT State University with concentrations in counseling and public health. She has extensive experience in group processing, stress reduction techniques, guided visualization, and meditation for children, teens and adults. She lives with her beloved husband and precious young son and daughter. She enjoys exercising, writing, reading, cooking, and can be found outside with her telescope on most clear nights. Along with volunteering for DYNA, Amanda is known for her skills in the field of stress reduction and life style management techniques.
Katie (Jackson) Brill, born in 1987, is from Virginia and has been with DYNA since 2006. Katie was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2002 . She graduated with a BS in Business and Family and Consumer Sciences, from Bridgewater College in Virginia in 2010. She currently works full-time in the finance field for a company located in the Shenandoah Valley. She recently married her State Trooper husband and enjoys spending time with her beloved, adorable nephew. Along with volunteering for DYNA, Katie is known for her attention to detail and willingness to help in any way she can. She is respected for her kind heart and noted for her devotion to fashion, arts and crafts, and sports. Katie bakes mouth-watering cookies for an annual DYNA fundraiser which she and her family conduct.
Melissa Douglas Jenkins, born in 1988, is originally from Kentucky and has been with DYNA since 2001. Melissa was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2000. She has a BS in Biochemistry and Molecular Biology from Centre College, KY. She is currently a medical student at Indiana University School of Medicine, class of 2014. She lives with her beloved law student husband and an adorable West Highland Terrier. After her graduation, she plans to pursue medical residency training in anesthesiology and critical care medicine. Along with volunteering for DYNA, Melissa enjoys shopping, exercising, traveling, playing with her dog, and sporting tiaras.
Ariel Miller, born in 1991, is the youngest member of our Youth Advisory Board and is from Indiana. Ariel has been with DYNA since 2008. Ariel was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2007. She will graduate from Indiana University - Purdue University Fort Wayne in spring 2014 with B.S. in Biology - Pre-medicine, A.S. in Chemical Methods, and a minor in Anthropology. She hopes to one day work as a pediatric specialist in a hospital setting. Along with volunteering for DYNA, Ariel has a passion for science, and she is an active member of the Beta Beta Beta National Biological Honor Society. With all that going on, Ariel doesn't have much free time, but when she does, she spends it hanging out with friends, watching romantic comedies and documentaries, and traveling.
Joey Sciarra is from Connecticut and has been with DYNA since 2007. Joey was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in 2006. He is currently a student at University of Connecticut, where he is majoring in Accounting. Along with volunteering for DYNA, Joey has a passion for Atmospheric Science, particularly Meteorology, and enjoys weather forecasting. He is an avid sports fan, with baseball and college basketball being his favorites. Joey also enjoys listening to a wide variety of music, especially Contemporary Christian and Country.
If you are a Facebook friend of DYNA you will have heard about Nanny Dysautonomia. Her kind-hearted words of wisdom are highly respected by her DYNA family and she passes these on to the public via DYNA’s Facebook page.
Born Irene Henderson in 1920, "Nanny" was raised in northern England. Her natural talents are in writing, editing, gardening and knitting. She is a born pet lover, a natural people person and she has a kind heart and loving spirit. During World War II, she proudly served in the Women’s Royal Naval Service where she learned a great deal about life and hardships. At a dance for the US Troops, Irene met an American Army Air Corps serviceman from New York. The handsome young man was quite a dancer and he literally swept Irene off her feet. The two soon fell in love and became engaged. After the war ended Irene came to America as a War Bride on the Queen Elizabeth. She has three children, 6 grandchildren and 3 great-grandchildren.
Irene has volunteered for DYNA for many years and has become close to many Youth Ambassadors. She deeply respects the strength and determination of these exceptional young people. The affection is mutual and many DYNA Youth Ambassadors have come to call her “Nanny.”